It is only 4:45 and we are already home! Simon's treatment went without a hitch today. Not only did he have no reactions, but they were also able to increase the rate of his medicine, so we were able to be out of there in record time. It felt good to not be the last ones in the clinic.
We did have a special treat at the clinic before lunch. Simon's teacher came by to visit with him. It was great to have company. Simon was encouraged by the visit, as was I. Since the kids had a snow day, Mrs. H was free to come by. What a blessing!
Simon is done with the Atgam treatments. Now we wait and see. On Monday, he will go in for blood work, but the long days at the clinic are over for now. Life should be able to return to some semblance of normal. It will be good to be home.
The clinic is going to work on approval from the insurance company to have the family tested as possible bone marrow matches.
Simon and Ezri are playing together, and picking on Beau. In other words, family life appears normal. It is one of those times when it is hard to grasp how very sick Simon is. He doesn't seem different from a month ago or two months ago. He is happy and active. How can this child be critically ill?
Tomorrow may present new challenges, as our bi-polar child starts on heavy doses of steroids. I will put that worry aside for tomorrow.
Tonight, I am going to get dressed up and go to a Valentine's Banquet with my husband. Some much needed time away from the stress of the past two and half weeks. I am going to pray that the kids stop fighting and can let me have this small thing!
A diary through the thoughts of a mother whose son was diagnosed with a critical illness.
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