The differences between yesterday's treatment and today's treatment is like day and night. No fever, hives, shakes, etc. The biggest issue today was boredom, for which I am very thankful!
Simon has had trouble today with his line getting blocked. They have had to change his filter twice today. Not really a big deal, but just annoying.
Simon also needed lasix to get his bladder to empty. A common side affect of the meds.
While today has not been emotionally draining like yesterday, I am still exhausted. If all goes well tomorrow, Bob will be the one to sit down here with Simon for the afternoon. I am looking forward to hanging out at the school for a bit and attending orchestra. Because Simon's treatments take all day, we are the first patient here in the morning and the last ones to leave at night.
Tonight, we should finish up around 6 and be home before 7. It will be dinner and to bed for this tired mom! Thanks for the prayers!
A diary through the thoughts of a mother whose son was diagnosed with a critical illness.
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